Cranial Purge

We are so proud of the way our niece, Emily, is learning to navigate her new normal. We will help spread the word in any way we can!

Tales From Swimmin Hill

I’ve been wondering these last couple days, is this ever going to slow down? Less than a year ago, I’d never even heard of Schwannomatosis, and now it greatly impacts every day of my life. Even aside from the surgeries and their recoveries, I’m in intense, chronic pain most of my waking hours.

It’s limiting how much I can play, or work, or plan. And if you know me at all, you know that I can’t stand to not be working. Ever. I don’t even vacation well because I have this need to always be productive. And here I am, after about thirty minutes of book work for Simply Gorgeous, laying down because I can’t sit up another minute. Bet you can guess that the pain really limits how many games of tag I can get into.

Tough pill to swallow. I know I have tumors all through my…

View original post 582 more words

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s