We are so proud of the way our niece, Emily, is learning to navigate her new normal. We will help spread the word in any way we can!
I’ve been wondering these last couple days, is this ever going to slow down? Less than a year ago, I’d never even heard of Schwannomatosis, and now it greatly impacts every day of my life. Even aside from the surgeries and their recoveries, I’m in intense, chronic pain most of my waking hours.
It’s limiting how much I can play, or work, or plan. And if you know me at all, you know that I can’t stand to not be working. Ever. I don’t even vacation well because I have this need to always be productive. And here I am, after about thirty minutes of book work for Simply Gorgeous, laying down because I can’t sit up another minute. Bet you can guess that the pain really limits how many games of tag I can get into.
Tough pill to swallow. I know I have tumors all through my…
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